Patient Advocacy Specialist

Company: Illumina
Company: Illumina
Location: US - Washington DC - Remote
Commitment: Full time
Posted on: 2024-01-14 05:33
What if the work you did every day could impact the lives of people you know? Or all of humanity?At Illumina, we are expanding access to genomic technology to realize health equity for billions of people around the world. Our efforts enable life-changing discoveries that are transforming human health through the early detection and diagnosis of diseases and new treatment options for patients.Working at Illumina means being part of something bigger than yourself. Every person, in every role, has the opportunity to make a difference. Surrounded by extraordinary people, inspiring leaders, and world changing projects, you will do more and become more than you ever thought possible.Illumina is looking for an experienced Patient Advocate to continue and expand our work with regional responsibility for the Americas. The Patient Advocacy function forefronts meaningful engagement with individual patients and the groups that represent them in order to build evidence and advocate for the positive impact of genomics utilization in the clinic. With regional responsibility across the clinical segments of oncology, rare disease and reproductive health, you will play an active role in the design and execution of Illumina’s Patient advocacy strategy. The Patient Advocacy Specialist for AMR will be based in Washington DC and reports to the Global Head of Patient Advocacy.The core areas of responsibility for this position will include: keeping abreast of developments in oncology, rare disease and reproductive health, strategy development, increasing our imprint by identifying and building key relationships with relevant patient organisations, and driving evidence generation and innovation around patient experience and the implementation of genomics in these segments. You must be able to effectively anticipate, track and analyse the full implications of the patient journey that could impact Illumina’s mission, or operating environment in the broadest sense within region. You will interact productively with the company’s cross-functional environment, working in close connection with other functions such as: Government Affairs, Market Access, Medical Affairs, Corporate Social Responsibility and Commercial Ops amongst others. The Patient Advocacy Specialist must show a high level of understanding of the role that genomics can play within patient journeys and work proactively to implement localized strategy. You must be adaptable to new fast -moving  situations with a high level of energy and passion towards patient experience, genomics and its broad applications in routine healthcare.Responsibilities:With guidance/direction from the Global Head of Patient Advocacy,Support the broader Global Patient Advocacy strategy by contributing to the development and execution of a patient advocacy strategy for your regionDevelop and maintain relationships with patient advocacy representatives, stakeholders and industry experts related to Illumina’s businessConduct best practice patient advocacy outreach, education and evidence generation programs that foster two-way flow of informationMaintain and communicate an effective mapping and analysis of the broader landscape of clinical implementation of relevance to the Illumina mission in oncology, rare disease and reproductive healthCreate opportunities for stakeholder collaboration that contribute to the improved uptake of diagnostic sequencing in routine healthcareServe as the “voice of the patient” to contribute to Illumina Public Affairs strategy internally and externallyEnsure effective representation of Illumina at key patient advocacy meetings, on working groups and advocacy associationsRequirements:Extensive experience (6+ years) in patient advocacy and policy environment. A good understanding of issues surrounding genomics will be considered an advantage.Fluent in English. Some fluency in Spanish, or another language would be highly regarded.Demonstrated ability to build relationships with patient advocacy groups, professional associations and expert stakeholdersAbility to work effectively with cross functional and leadership teams to achieve collective goalsProject management and reporting skills, with the ability to manage multiple projects simultaneouslyExcellent verbal and written communication skillsDemonstrated awareness of the issues of diversity and inclusionConfident personal presence, with skills in public speaking and experience managing and hosting live activities/programsA self starter: Independent and self motivated, strategic and results-driven.Exercises exceptional ethical judgmentPosition will require significant travelEducation:Bachelor level degree or aboveEducational Background in social sciences preferredBased in Washington DCThe estimated base salary range for the Patient Advocacy Specialist role based in the United States of America is: $126,800 - $190,200. Should the level or location of the role change during the hiring process, the applicable base pay range may be updated accordingly. Compensation decisions are dependent on several factors including, but not limited to, an individual’s qualifications, location where the role is to be performed, internal equity, and alignment with market data. Additionally, all employees are eligible for one of our variable cash programs (bonus or commission) and eligible roles may receive equity as part of the compensation package. We offer a wide range of benefits as innovative as our work, including access to genomics sequencing, family planning, health/dental/vision, retirement benefits, and paid time off.At Illumina, we strive to foster a diverse and inclusive workplace by cultivating an environment in which everyone contributes to our mission. Built on a strong foundation, Illumina has always been rooted in openness, collaboration, and seeking alternative views and perspectives to propel innovation in genomics. We are proud to confirm a zero-net gap in pay, regardless of gender, ethnicity, or race. We also have several Employee Resource Groups (ERG) that deliver career development experiences, increase cultural awareness, and demonstrate our collective commitment to diversity and inclusion in the communities we live and work. We are proud to be an equal opportunity employer committed to providing employment opportunity regardless of sex, race, creed, color, gender, religion, marital status, domestic partner status, age, national origin or ancestry, physical or mental disability, medical condition, sexual orientation, pregnancy, military or veteran status, citizenship status, and genetic information. If you require accommodation to complete the application or interview process, please contact accommodations@illumina.com. To learn more, visit: https://www.dol.gov/ofccp/regs/compliance/posters/pdf/eeopost.pdf
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